Saturday, December 31, 2011

Somewhere Only We Know...


As a parent of a child with type 1 diabetes, I often can't help but long for a time and place when diabetes didn't affect our lives. The simpler times without the constant blood sugar checks and worries.

But I snap myself out of that and instead remind myself of how lucky we are, how we have the power to make a difference.

Here's to never giving up, and to always looking forward.  And to remembering that HOPE is a powerful thing, and that with enough perseverance we will return to a place and time without type 1.

Happy 2012!! Check out the video link above!!

Friday, December 30, 2011

New Year's Eve Thumbprints

My cookie baking was lacking this year...didn't seem to have time to try many new cookie recipes before Christmas like I usually like to do. So I thought I would make one batch just in time for NYE.
Thumbprint cookies are my absolute favorite, and I have to say these lived up to my expectations. Recipe is from food.com and vanilla buttercream from food network. Yum.


Pecan Thumbprints

1/4 cup sugar
1 cup butter
2 cups flour
1 teaspoon vanilla
1/2 cup chopped pecans
1/4 teaspoon salt

Mix all ingredients together. Roll into balls and indent with thumbprint, without breaking through the dough. Bake at 300 degrees for 20-25 minutes. Let cool completely and fill with icing.

Quick Vanilla Buttercream (half batch)

1 1/2 cups powdered sugar
1/2 cup butter
1/2 teaspoon vanilla extract
2 tablespoons whipping cream

Mix butter and powdered sugar on low for 1 minute, increase to medium for 3 minutes. Add vanilla and whipping cream, and beat 1 minute more. Divide and add food coloring, if desired.

Thursday, December 29, 2011

Happy Birthday, Lukas!



5 years ago,  a hefty, happy 10 pound baby named Lukas Edward entered our lives.

He's had us laughing ever since!! Happy Birthday to my baby boy!


Saturday, December 17, 2011

We came, we saw, we knocked out some pigs!

7 preschool boys + 1 homemade Angry Birds game = ONE fun birthday party!!

And a lot of energy in one house in the middle of winter!

Wednesday, December 7, 2011

Tis the Season

So cracking open the emergency glucagon kit for the first time is definitely not a good feeling.

Thankfully, it wasn't because leah was unconscious...but a nasty stomach bug, ketones, and blood sugars well below 80 left us no other option.

After a day of trying to force any kind of sugar down her throat and just hoping it would stay down, her doctor recommended zofran and mini-glucagon doses to keep us from heading to the ER. Luckily, it worked... The zofran stopped the puking, she needed the glucagon about every two hours through the night which raised her just enough so I could keep bolusing insulin to get rid of ketones (yay me for finally remembering to get a blood ketone meter!), and it bought us time til morning.

But when the puking started again the next night, I figured we were headed to the hospital for sure. Luckily, zofran helped her keep some juice down, we made it through one more night, and finally today has been good.

A nice reminder of the fun that winter and flu season brings. It's funny what becomes your reality--staring at the glucagon, syringes, empty juice boxes, making 3am phone calls to the endo...you just kind of go into autopilot, do what you need to do, and hope beyond hope you're making all the right decisions.

Thursday, December 1, 2011

Sad face finger

We pricked Leah's finger and the blood made a sad face....Leah says we must of hurt his feelings. :)

Saturday, November 5, 2011

Miles of Hope Recap

Wow. 

Leah enjoying herself along the walk route.

I'm still in a bit of shock that our first ever Miles of Hope to Cure Type 1 Diabetes went as well as it did. It's absolutely amazing to me the generosity and support that our family, friends, and community gave us to pull this off. I don't know how I could sufficiently thank those that donated their time and money that day and in the weeks leading up to the walk. We started from scratch just a few short months ago, and held an organized, successful, awesome event!!

Our total money raised is well over $19,000 and we might pass the $20,000 mark in the near future!! Putting those checks in the mail to the Faustman Lab last week was definitely the best feeling I'd had in awhile. 

The other good feeling is seeing our kids with type 1, and how much fun they had that day, and how important this was to THEM. They inspire us with their bravery and responsibility, and we're so proud as parents to do our part to take this disease out of their lives.


Our D-kids!


It's been nice to have a break from planning and fundraising these last few weeks. But I can't help but already think about next year and how we can be even bigger and better. The sky's the limit as far as I'm concerned, and we'll do what it takes to make a difference in our kids lives. 

The D-moms I'm so thankful to have in my life


Miles of smiles, fun, and HOPE!!

Friday, October 21, 2011

Tomorrow, we walk!!


Two months ago some fellow D-moms and I had a crazy idea to throw our own fundraiser together. Well, tomorrow is the day, and I'm proud to say we're expecting about 300 people and our donations are already in the thousands! 

Today Leah came home with a book she had written at "free writing" time called "All About Miles of Hope." She shared it with her class, and her principal read it to the entire second grade at lunch time. I'm really proud of her and am glad she felt comfortable enough to share some things with the other kids....

"Miles of Hope is a walk to raise money for type 1 diabetes.
















It is hard and I cry sometimes. I have to change my pump every 3 days.
















Miles of Hope is on the 22nd of October.

My friends stick up for me all the time."


Yep, pretty much sums up why we walk. Looking forward to a great day!!

Thursday, October 6, 2011

Ready to Run!

Holy crap, I'm running a marathon in 3 days.

Just ran a slow, easy 2 miles to get some nerves out. The stars were bright, the air was nice, and Lady Gaga was pushing me along in my earbuds!

I saw this great quote this morning from the late, great Steve Jobs....

"You can't connect the dots looking forward; you can only connect them looking backwards. So you have to trust that the dots will somehow connect in your future. You have to trust in something -- your gut, destiny, life, karma, whatever. This approach has never let me down, and it has made all the difference in my life."

I feel ready. Looking back over the past 6 months, I know I've put in the work and I'm ready to prove to myself that I can do this! Now it's just a matter of getting through the next few days without being a nervous wreck.

Saturday, October 1, 2011

Dipped apple slices

I prefer my apples with melted chocolate chips, peanut butter chips, and assorted toppings. :)

Thursday, September 29, 2011

It's a Marathon, not a Sprint

The Chicago Marathon is 10 days away. My first 26.2 miles, and I seriously can't wait to get it over with.

Each training run this week gets me one step closer, and I decided last night at 10:30pm to go outside and get my 5 mile run over with. What's the difference between that time of night and 5am, right?

But before I could go outside I heard Leah's pump beeping low...85....not too bad, and we haven't really had unexpected lows popping up at night lately, so after giving her half a juice box I ventured out for my run.

It was a beautiful night. There seemed to be a million stars in the sky, the air was cool and crisp, and the darkness is always sort of comforting to me while I'm running. It was a nice chance to get out and clear my head after a long day, and I knew when I was finished I could just go home, go to bed, and sleep a little longer in the morning.

Wrong. As soon as I walked in, I heard the pump again. (My sleeping husband hadn't heard it yet). 65 this time. Another juice box. I stayed up awhile to keep an eye on things.

1:00 a.m. rolls around and she's low again. Another juice box. Suspended the pump so she wasn't getting any insulin. Tried to get to sleep, which of course is next to impossible when your child is in the next room teetering on the verge of dangerously low blood sugars.

I've often thought about the similarities between long distance running and diabetes. They are both physically demanding and take a tremendous positive mental attitude to get through. But the running is just plain easy compared to the day to day crap that diabetes dishes out. On marathon day, my body will hurt at the 20 mile marker, I'll somehow make myself keep running through the pain, and then it will be over.

Diabetes will not go away. Leah will need to endure for years and years to come. She'll need an attitude that keeps her going, even when her body is beat up from injections and site changes, and her mind just tells her to quit. Her 26.2 miles is the course of her life with type 1 diabetes, and it's definitely a marathon, not a sprint.

Leah and her brother at a Kids Fun Run this summer.

Wednesday, September 21, 2011

Site Night

It was site change night at our house, and it always amazes me how much stuff there is that goes into it. Insulin, tubing, reservoirs, needles...lots and lots of parts and waste.


But the thing that always really amazes  me is Leah's composure....just sucking in her breath, waiting for the needle to go in, and letting out a big exhale when it's over. 

Tonight she was describing how it didn't hurt too bad, and that it seems to have gotten better over time. She said "That's how it works I guess, that it just keeps getting less painful, so maybe when I'm older they'll invent something that doesn't hurt as much at all." 

Then she paused and said, "Well, actually, I hope I don't have to do this for the rest of my life.  Maybe I won't have diabetes forever if there's a cure."

Hope is a powerful thing. I hope she's right!!

Monday, September 19, 2011

Really??


So the "physical education" newsletter came home a few days ago. 

I appreciate the fact that schools are trying to educate our kids about a healthy lifestyle. I can even look past the irony that while sending home information about "trans fats" and "obesity," they are still serving fried corn dogs in the cafeteria most days.

But by putting DIABETES into the same category as OBESITY and TRANS FATS (with no further explanation), it's pretty much going to send out a message that diabetes just means BAD.

The kids this went home to are in second grade. There are 3 kids with Type 1 diabetes in Leah's school, and I'm pretty sure most kids (and parents) don't know much about diabetes except that they might have a friend who "has it" and goes to the office to prick their finger every once in awhile. They already have enough kids telling them "You can't eat that!" and "You ate too much sugar and now you're diabetic?", that I really don't think we need to add fuel to the fire. 

I brought these things to the teacher's attention, and after a few emails from myself and another parent, they clearly seemed more interested in defending themselves than in seeing our point. Educating people on diabetes gets tiresome, especially when they prefer not to listen.



Friday, September 9, 2011

Everyone's "Fine"

First of all, thank you to Leighann at D-mom blog for highlighting Miles of Hope in her Grassroots Fundraising series today!! We've almost doubled our online donations in a week, and our registration continues to grow.

On a related note, I saw a quote by Dr. Faustman today that said when it comes to diabetes she still hears people say "I know someone with type 1 diabetes, and they're fine," and that it's important to educate and clear up misconceptions about this disease.

As parents we hear this all the time. We're told by people that we're lucky it's not something worse. That they know someone who "got diabetes as a kid and now they're grown up and fine."

But it's not fine. 10 fingers pricks a day is not fine. Multiple injections a day is not fine. Being hooked up to multiple devices each day is not fine. And that's just the physical stuff.

What about the anxiety at school Leah has if she's late to lunch after her check in the office. The sleepover she can't go to, or the interruptions at a birthday party or a playdate. The tears after someone notices she's "different" (in their eyes). The carb counting and limitations.

There's the never-ending fear of the unthinkable happening at night. Or the complications that can come as a result of living with this disease, even when you're working your butt off every day to try to get it right. None of it is fine.

Fundraising can be hard. It takes a lot of energy and time, and it's difficult to get the point across of what this disease really means for our kids. But it's worth it.

I will never be "fine" with diabetes. We know everyone has hardships in life and we count our blessings every day. But diabetes is awful, relentless, and it takes far too many lives. It needs to go away. And our kids deserve every penny we can raise, every amount of effort it takes to make that happen. Then things will be fine.

Thursday, September 1, 2011

Featured!!

Miles of Hope is taking off!! We've gotten a ton of business donations the last few weeks and are well on our way to having a great event.

Today, Angie and Trevor at marathontrainingacademy.com are sharing info about our event! I've been following their training plan for my first marathon in about 6 weeks (yikes!) and their information is invaluable for any runner, no matter what your goal is.

Leah's life is a huge motivation for my running, and her grin was ear to ear as she heard our story being shared on their podcast.

If you click on the link below, you can scroll down and see where they mention our event in the blog comments. Also, just click on "play" on the podcast button and you'll hear about us within the first few minutes.

http://marathontrainingacademy.com/answers-to-your-questions-about-marathon-training

Register for Miles of Hope by following this link. You can participate and donate in many ways, and help us get one step closer to imagining a life without type 1 diabetes.


Monday, August 29, 2011

Baked Oatmeal




My kids love oatmeal and it's a good breakfast for school days. A friend shared a baked oatmeal recipe with me this summer, and I made a few changes to cut down on sugar.  I had some extra time this morning to make it and I think it turned out great. A good breakfast to start off another week of school!









Baked Oatmeal

4 1/2 cups old fashioned oats
1/4 cup brown sugar
1 tablespoon cinnamon
1 tablespoon baking powder
1 teaspoon salt
1 egg
2 egg whites
1 1/2 cups milk
1/4 cup melted butter or butter substitute
1/4 cup agave nectar

Preheat oven to 375 degrees. Mix dry ingredients. Add butter, milk, agave and egg/egg whites and combine. Pour into a 9x13 pan sprayed with cooking spray. Bake until set, about 20 minutes (just check after 15 or so, you don't want to dry it out).

Cut into 8 squares (big pieces, but my kids are big breakfast eaters) and each piece is 30 carbs. 

*We like to put some extra milk and a little honey or agave on top of ours.

Thursday, August 18, 2011

Back to school!

Second grade started today. Sigh. Where does the time go??

Leah was super excited, although she usually has some anxiety about diabetes stuff as a new school year rolls around. New schedule, when to test blood sugar, how to get to lunch on time with her friends....stuff I really wish she didn't have to think about and could just enjoy her day!

She's surprised me a little this year in that she's much more vocal about how her schedule being disrupted makes her feel. When I told her she'd have to go to the office at 1:45 every day to test at the tail end of recess, she pretty much told me no....in a sort of nice way. It's more important to her to stay with her class through recess, go back inside with everyone, and then test on the way back through. A very slight change, but one I can live with and totally respect. We're also treating lows in the classroom this year, which she was super excited about. 

I don't want diabetes to disrupt her day any more than she does, so compromises are fine by me as long as we're not compromising her care. I'm proud she's speaking up and taking a little more initiative to feel more comfortable. I know we'll have good and bad days like we always do, but remaining positive and keeping her involved will hopefully help when diabetes rears its ugly head.

Her summary of her first day? "I had so much fun I forgot I even had diabetes!!"

Tuesday, August 16, 2011

Miles of Hope!!!



The last few years, we've done a walk to raise money for diabetes research. Leah looks forward to it, and it feels good to help make a difference.

This year we decided to switch it up a bit. We're still doing a walk, but we're doing our OWN walk! There are about a dozen families in the small community I live in that have children with Type 1, and on October 22, 2011 we are coming together for our own event and donating the proceeds to The Faustman Lab.

The cool part is, this walk is not just a local event....it's also a VIRTUAL WALK, meaning ANYONE can participate by donating and dedicating their walk or run for the day to the cause. We want to reach as many people as possible while raising awareness for our kids and helping to cure this disease.

Visit the Miles of Hope registration page to register, donate, and participate. We know it will make a difference!!

Monday, August 8, 2011

It's camp time!!

Every year, Leah's diabetes camp turns me into a blubbering mess.

The first year, it was because she had just turned 5, was newly diagnosed, and the thought of leaving her ANYWHERE, even with medical professionals, felt overwhelming and scary.

The next year, she was a little older, on a pump and a little more independent, and seeing her more comfortable with things of course felt like she was growing up too fast.

This year, her crazy 4 year old brother gets to go too...and seeing them enjoy it together brought all the waterworks back one more time.
Of course, there is also the reminder that we're here BECAUSE of diabetes, and really I would like it to go away.
But that reminder will be overshadowed by the fun they'll have while not needing to be checked on by me. And the fact that she's safe because of highly trained counselors and volunteers. And the fact that she gets to see all kinds of kids going through the exact same things as her.

For that, I am very, very grateful.

Friday, August 5, 2011

Yoga, Art, and Dancing, Oh My!!

Leah had been counting the days until her Yoga, Art, and Dance camp started, because according to her..."those are my 3 favorite things in the whole world!" She's a tad bit girly.

Day one rolled around and she had a great time. As I dropped her off (it's a three hour camp and I was staying close by to handle blood sugar issues) I sort of explained a few things to the bewildered-looking instructors. I really didn't say much, actually, other than "here's my phone number, call me if she's beeping." I left a juice box just in case, but knew I could be there in  minute if they needed me.

Of course, less than an hour into things she was beeping. It had to be right in the middle of the yoga portion too--you know, when a bunch of 6 and 7 year olds are supposed to be meditating. They called me, I corrected the 250 blood sugar, and popped back in for snack time a little while later.

Day two rolls around. Same exact breakfast. Same exact scenario. However, when they called and said "She's beeping," (at roughly the same time) I tested and she was....50. Ahh, thanks diabetes for never working the same way twice.

The rest of the week she was consistently low mid-morning no matter what changes I made, so we'll keep working at it. It's a nice reminder for what's to come as school rolls around in the next few weeks. The nerves, the new schedule, the changes day to day.

Maybe we'll just try her new yoga meditation to calm those blood sugars right down... :)

Saturday, July 30, 2011

Happy weekend!



Getting up at 4am and leaving the house at 4:30...pretty tough.


Watching the sun rise and feeling a nice breeze through the air...pretty nice.


Walking in with a sense of accomplishment after a 12 mile run and seeing this cute face...the best thing ever. :)

Wednesday, July 27, 2011

Up All Night

It was a multiple juice box kind of night.


CGM low alarm constantly ringing, fumbling in the dark for test strips. Suspending the pump for hours to ensure the number would finally go up.

This is kind of how our summer has been...very unpredictable and not making sense, no real patterns because of the varied activity, weather, and foods. I'm looking forward to the routine of going back to school.

When we were up for the day I saw this on facebook, and it totally hit home. It describes the need for approval of technology that's already developed but not in use in the US, like the Medtronic Veo. Having a pump that would shut off during hypoglycemic events, especially in the middle of the night, would be peace of mind times 10. At the very least I would know insulin delivery would stop if it took me 20 minutes to hear her Low Predicted alarm--which happens from time to time since the alarms are not at all loud enough.

And that's of course only the beginning....there's multiple pumps, CGM home screens, and new sensor insertion devices (just to name a few) that we've all been told are just "awaiting approval."

Of course, in the meantime we just have to make the most of the tools we have, and be grateful for the many strides technology has made in managing diabetes. No new product will make type 1 diabetes go away, or even make it easy. But helping avoid the more dangerous situations would be nice.

I'm tired today, and a little bitter that our kids have to wait for this stuff, knowing it could be better.

Saturday, July 23, 2011

15 miles

80 degrees at 5am with 80% humidity.
Not a good thing when 2 miles into a 15 mile run I'd really like to quit. Pretty sure I've never sweat so much in my life.
It's runs like these when I have to really find some mental motivation to keep going. It can be tough when it's nothing but me and my thoughts for 2-3 hours of pounding the pavement. But usually my thoughts end up turning to Leah, and the things she faces on a daily basis.
Last weekend, after playing outside in the heat and being disconnected from her pump for awhile we got a "high--over 600" reading on her meter. She didn't feel good and fought me pretty hard as I had to jab the syringe in her arm, followed by a site change, a check for ketones and a tummy ache.
A few weeks ago we had a bad sensor insertion (a horribly large dagger-like needle) that didn't go in all the way and was left half-in and half-out as she stood screaming until we could pull it out and fix it.
The nasty rashes she seems to be getting from adhesives and bubbles of insulin pooling under her skin this summer. Her reaction being "Mom, this is grossing me out."
All the fun behind-the-scenes stuff no one sees or knows she endures.
So all in all, when my knees are aching and my mind keeps telling me to stop, I need to remember that it's temporary, that I'll reach the finish. Diabetes will still be around for Leah everyday. She doesn't get to quit, so I'll try not to either.
Sent from my iPhone

Thursday, July 14, 2011

How low can you go

"Mom, I don't feel good."
Leah popped her head out of the water during swimming lessons to let me know she was feeling low.
3...2...1...and the meter read 35.
It's those moments that I feel like I can't get the juice box open fast enough, that a few seconds takes what seems like an hour as your heart drops to your stomach.
A juice box and glucose tab later, she wanted to get right back in and swim. Every time she went under water and took longer than the other kids to come up I felt sick to my stomach.
Its times like this I think...what if she hadn't felt it? How low can you possibly go without a horrible outcome?
I hope we never know the answers to those questions. I hope we can catch them every time before that ever happens. I hope someone cures this stupid disease.

Monday, July 11, 2011

Margherita Pizza

We love to grill pizza in the summer. This one has been my favorite so far!


Ingredients:
dough for your favorite pizza (I like (almost)whole wheat)
3 medium sized tomatoes, sliced thin
10-12 basil leaves, cut into ribbons
8 oz. fresh mozzarella
1/4 cup olive oil
3 crushed garlic cloves


Grilled method:
Using a pizza peel, cook one side on the grill until lightly browned, and repeat on the other side. 

Remove from grill  and put on cookie sheet or pizza pan for the oven.

Brush with oil and garlic.

Add sliced tomatoes, basil, and mozzarella.

Broil on Low until cheese is melted and bubbly, about 10 minutes--watch so it doesn't burn!


Oven method:
Preheat oven to 400 degrees. 

Roll out your favorite dough onto a cookie sheet or pizza stone.

Add sliced tomatoes, basil, and mozzarella.

Bake 20 minutes or until crust is golden.



(Almost) Whole Wheat Pizza Dough

  • From food.com......





  • 1 cup water
    2 tablespoons water
    2 tablespoons olive oil
    1 1/2 cups all purpose flour
    1 1/2 cups whole wheat flour
    1 teaspoon sugar
    1 teaspoon salt
    2 1/2 teaspoons yeast





  • Add all ingredients to bread machine and choose Dough setting. Roll out and top with your favorite ingredients. Bake at 400 degrees for about 20 minutes or until cooked through.


    Or use a pizza peel to grill on both sides (usually just a few minutes on each side) until lightly crispy. Then add your favorite toppings and broil in the oven until cheese is melted--grilled is our favorite!


    Total carbs in dough is 282.

    Sunday, July 10, 2011

    Vacation Recap

    Summer vacation!!

    First stop, Nashville...

    Famous Music venues
    Elvis Spotting!



    Dinner out

    The Parthenon at Centennial Park

    10k on the Fourth

    Then on to South Carolina...

    Happy 4th of July!

    House in the mountains

    Cool trails

    Beautiful waterfalls

    Cute kids!

    Swimming and sun

    Great memories

    Wonderful trip!!

    Thursday, June 30, 2011

    Top 10 Reasons Babysitters Must Think We're Crazy

    Anyone with a child with diabetes knows that getting out of the house alone becomes VERY difficult. Especially at Leah's age, where she still needs quite a bit of assistance in her care.

    Over the last few months we've had some sitters willing to give it a shot, and it's mostly been a positive experience. But it's always a bit awkward when you hear yourself trying to explain diabetes-related things to a person that really has no previous understanding of it. Some things that must make these new people go "huh??"...


    1. A million phone numbers to call in the event of an emergency.

    I think I've listed me, Ed, my brother, our neighbor, a friend with a Type 1 child, and a friend who's a nurse practitioner just to name a few. Overkill?


    2. Our address at the top of the instructions page in BIG letters in case they need to call an ambulance.



    3. Showing them how to check blood sugar.

    This seems so easy to us, but I'm sure it seems crazy to expect them to help Leah with it when they've never done it. Luckily, she can really handle it on her own, but I always show them just in case. I've been known to follow it up with a blunt "Does this freak you out?"



    4. Glucagon.

    This is the biggee. It usually goes something like this.. "umm, yeah, so if Leah were to be unconcious or having a seizure or something and you can't get her to eat or drink anything, you should take out this vial, insert the liquid, shake it up, draw it back up into the syringe, and give her a shot anywhere on her body. Ok? But don't worry, that should never happen." Yikes.



    5. TRYING to explain her CGM in a nutshell.

    "She wears this sensor, so it will alarm if she's too high or too low, etc., etc.." Seems pretty straighforward, right? But then there's always some sort of confusion that the pump actually regulates the blood sugar automatically......or explaining the lag time is confusing....or it alarms in some weird way that hasn't happened in a long time but of course does while we're gone. Ugh.



    6. The crazy long cord from our bedroom to Leah's bedroom that connects the microphone in her room to the speakers in our room. 

    While showing her the kids' rooms and upstairs, I realized it must look pretty silly to have a microphone set up and a cord stretching all the way down the hall...we obviously would prefer NOT to do this, but it's the only way to hear that silly sensor alarm (WHY don't they make that louder??). We must look paranoid and ridiculous, but it's for the sole purpose of getting more sleep at night.


    7. The "freebie" drawer.

    Sometimes I don't like to give too much insulin when I know one of us won't be around for a little while. And depending on the sitter, I don't want them to deal with watching Leah operate her pump since it probably looks like Greek to them. So I'll stock a drawer full of free stuff--cheese sticks, turkey roll ups, nuts, sugar free jello, carrots, etc. But I'm sure it looks weird that we seem to only let our kids eat the same things over and over. It's just circumstantial, but they don't know that.



    8. Basal testing--AKA appears that we're starving our child.

    We were in the middle of a morning basal test one day when the baby sitter arrived. I tried to casually explain the reasoning behind it and what we were trying to see, and also explained why no carbs can be eaten at this time. I found myself saying "so if she absolutely has to eat she can have one cheese stick but that's it." Followed by an uncomfortable laugh and explanation that we don't starve our child on a regular basis.



    9. Good questions, with a million different answers.

    I've had some good questions from sitters, such as "Isn't it dangerous to leave her too high?" The short answer is no, because I'm not gone for that long and it will be ok to deal with when I get home. But of course, the long answer is "Yes, prolonged high blood sugar or extremely high blood sugar is dangerous." Always confusing.


    10. And the final reason that babysitters must think we're a bit loony.....because we probably are. 

    Diabetes tends to drive you a little lot crazy on most days, so it's tough to explain things and tough to trust someone else with handling it. But I think we've done a good job of relying on people here and there, and as Leah gets older hopefully it will continue to improve.

    When the kids find out we're getting a babysitter, they literally can't push us out the door fast enough. So it might mean a million phone calls, and only an hour or two of getting out of the house, but it's good for them, too.

    Friday, June 24, 2011

    It's about time!


    Drumroll please......



    Finally, a big boy haircut!! It's only taken 2 and a half years....but he finally decided on his own to get his haircut for real. No more chasing him around the basement with the clippers. (those of you who have witnessed it know what I'm talking about--it wasn't pretty!!)




    Thursday, June 23, 2011

    Summer Reading


    I've been meaning to pick up this book for awhile, and finally requested it from the library and got started reading. 

    I knew it would be a tough read (pretty emotional and overwhelming at times), and now that I'm half way through, I'm totally hooked. It's obviously quite historical, but reads like a good novel. Just one you have to pay close attention to as not to miss dates and important facts!

    It's quite unsettling to read about the fate of type 1 diabetics less than 100 years ago....before the discovery of insulin it was basically a death sentence. The doctors described in the book figured out ways to prolong children's lives (by months or in rare cases years) by starving them, and that was the best they could do. 

    Then along came Dr. Frederick Banting (and a lot of other gifted people who funded him and worked with him). He followed a hunch and worked in horrible conditions to see through an idea that he thought would work. It did--and I'm just getting to the good part!

    It also tells the story of Elizabeth Hughes, the daughter of Secretary of State Charles Hughes. She was one of the first people to be effectively treated with insulin, and went on to do amazing things with her life.

    I highly recommend this to anyone who has an interest in diabetes, or even just an amazing story. I'm beyond grateful that so many years ago there were enough people not willing to give up on something so very important. Insulin is not a cure, but it is a life saver.

    Wednesday, June 22, 2011

    Ham and Swiss Pizza

    Tastes like a yummy hot ham and cheese sandwich!


    1/2 cup cottage cheese
    1/4 cup sour cream
    dash of pepper
    dash of Italian seasoning
    3-4 slices deli ham, chopped
    1 cup shredded swiss cheese

    1. Make your favorite pizza dough (I used the one listed below) and roll out into a 14 inch pizza.
    2. Combine cottage cheese, sour cream, pepper and Italian seasoning. Spread mixture on top of dough.
    3. Top with shredded cheese and ham.
    4. Bake at 400 degrees for 15-20 minutes, until cheese is melted and crust is golden.

    Cut into 8 slices. Each slice is 26 carbs.




    Bobby Flay's Pizza Dough Recipe (makes two 14 inch crusts)


    Ingredients

    • 3 1/2 to 4 cups bread flour, plus more for rolling (Chef's Note: Using bread flour will give you a much crisper crust. If you can't find bread flour, you can substitute it with all-purpose flour which will give you a chewier crust.)
    • 1 teaspoon sugar
    • 1 envelope instant dry yeast
    • 2 teaspoons kosher salt
    • 1 1/2 cups water, 110 degrees F
    • 2 tablespoons olive oil, plus 2 teaspoons


    Directions

    Combine the bread flour, sugar, yeast and kosher salt in the bowl of a stand mixer and combine. While the mixer is running, add the water and 2 tablespoons of the oil and beat until the dough forms into a ball. If the dough is sticky, add additional flour, 1 tablespoon at a time, until the dough comes together in a solid ball. If the dough is too dry, add additional water, 1 tablespoon at a time. Scrape the dough onto a lightly floured surface and gently knead into a smooth, firm ball.
    Grease a large bowl with the remaining 2 teaspoons olive oil, add the dough, cover the bowl with plastic wrap and put it in a warm area to let it double in size, about 1 hour. Turn the dough out onto a lightly floured surface and divide it into 2 equal pieces. Cover each with a clean kitchen towel or plastic wrapand let them rest for 10 minutes.

    One 14 inch pizza crust = 24 carbs per slice (when cut into 8 slices)

    Tuesday, June 21, 2011

    Garden Couscous Salad

    I needed a side dish to go with our veggie burgers tonight, and had some stuff to clean out of the fridge. I put together this salad and it is perfect alone or as a side!

    3/4 cup dry couscous
    1/2 English cucumber, diced
    2 medium tomatoes, diced

    Dressing:
    1/8 teaspoon Kosher salt
    3 tablespoons olive oil
    1 tablespoon balsamic vinegar
    1 1/2 tablespoons lemon juice
    1 clove garlic
    pepper to taste

    a few fresh basil leaves


    1. Cook couscous according to directions. Cool and mix with diced vegetables.
    2. Mix all ingredients for dressing and pour over couscous. Stir to combine.
    3. Refrigerate a few hours and add torn basil leaves before serving.


    Friday, June 17, 2011

    Diabetes Buddies

    We've had a friend of Leah's over all this week who needed a place to go while his babysitter was on vacation. He's a cute 7 year old we've gotten to know over the past year or so, and also has diabetes. They were even in the same class this year.


    Cute things overheard between the two of them throughout the week....

    While on the swings together and bolusing on their pump for the popsicle they just ate...
    "Cool! How much did it give YOU?"

    Discussing fast acting carbohydrates....
    "Chalk would taste bad if you ate it."
    "Glucose tabs taste kind of like chalk. But they're yummy!"

    Swapping hospital stories... (yes, kind of sad but hopefully therapeutic!)
    "Being in the hospital wasn't too bad....I had an IV."
    "Me too!!"

    "I got this stuffed animal while I was there."
    "I got one too!"

    Checking blood sugar before lunch, when one kid was 154 and one was 161....
    "Hey we're almost the same number!!"


    I think it's good for both of them to hang out and see another kid doing all the diabetes stuff they have to do. They test at the same time, discuss their favorite pump site locations, compare their favorite freebie snacks, and both wear cool camo SPIbelts. It's not fair they both got a bum pancreas, but I'm thankful they've gotten to know each other and don't feel so alone.

    Thursday, June 9, 2011

    Almond Butter Granola Bites

    I love the granola recipe we use for cereal in the morning, but I've been wanting to make something that resembled granola "bites" that we could use for a trail-mix-type snack. Here's what I came up with this morning!

    1 cup almond butter (you could also use peanut butter, I'm just kind of obsessed with the yumminess of almond butter lately)
    1/2 cup agave nectar
    1 cup unsweetened, shredded coconut
    1/2 cup wheat germ
    2 cups old fashioned oatmeal
    1/2 teaspoon cinnamon
    pinch of salt

    Mix almond butter and agave in mixer on high speed. This will get thick after 2-3 minutes. You want it to be somewhere in between the consistency of peanut butter and the inside of a peanut butter cup.

    Mix all dry ingredients together and add almond butter mixture to it. It will be too thick to mix with a spoon--just get your hands in there and work the oatmeal mixture into the almond butter mixture until it's crumbly and even distributed.

    Dump into a 9 x 13 pan and bake at 350 degrees for 30 minutes, stirring every 10 minutes. If the edges start to get too dark, stir every 5 minutes until slightly crunchy and toasty. Be careful not to overbake! (It will get crunchier as it cools off, too).



    I weighed mine into 15 individual baggies to make 20 carbs per baggy. We'll add some dried fruit and maybe some more nuts for a snack, or just eat it like it is!