Saturday, July 30, 2011

Happy weekend!

Getting up at 4am and leaving the house at 4:30...pretty tough.

Watching the sun rise and feeling a nice breeze through the air...pretty nice.

Walking in with a sense of accomplishment after a 12 mile run and seeing this cute face...the best thing ever. :)

Wednesday, July 27, 2011

Up All Night

It was a multiple juice box kind of night.

CGM low alarm constantly ringing, fumbling in the dark for test strips. Suspending the pump for hours to ensure the number would finally go up.

This is kind of how our summer has been...very unpredictable and not making sense, no real patterns because of the varied activity, weather, and foods. I'm looking forward to the routine of going back to school.

When we were up for the day I saw this on facebook, and it totally hit home. It describes the need for approval of technology that's already developed but not in use in the US, like the Medtronic Veo. Having a pump that would shut off during hypoglycemic events, especially in the middle of the night, would be peace of mind times 10. At the very least I would know insulin delivery would stop if it took me 20 minutes to hear her Low Predicted alarm--which happens from time to time since the alarms are not at all loud enough.

And that's of course only the beginning....there's multiple pumps, CGM home screens, and new sensor insertion devices (just to name a few) that we've all been told are just "awaiting approval."

Of course, in the meantime we just have to make the most of the tools we have, and be grateful for the many strides technology has made in managing diabetes. No new product will make type 1 diabetes go away, or even make it easy. But helping avoid the more dangerous situations would be nice.

I'm tired today, and a little bitter that our kids have to wait for this stuff, knowing it could be better.

Saturday, July 23, 2011

15 miles

80 degrees at 5am with 80% humidity.
Not a good thing when 2 miles into a 15 mile run I'd really like to quit. Pretty sure I've never sweat so much in my life.
It's runs like these when I have to really find some mental motivation to keep going. It can be tough when it's nothing but me and my thoughts for 2-3 hours of pounding the pavement. But usually my thoughts end up turning to Leah, and the things she faces on a daily basis.
Last weekend, after playing outside in the heat and being disconnected from her pump for awhile we got a "high--over 600" reading on her meter. She didn't feel good and fought me pretty hard as I had to jab the syringe in her arm, followed by a site change, a check for ketones and a tummy ache.
A few weeks ago we had a bad sensor insertion (a horribly large dagger-like needle) that didn't go in all the way and was left half-in and half-out as she stood screaming until we could pull it out and fix it.
The nasty rashes she seems to be getting from adhesives and bubbles of insulin pooling under her skin this summer. Her reaction being "Mom, this is grossing me out."
All the fun behind-the-scenes stuff no one sees or knows she endures.
So all in all, when my knees are aching and my mind keeps telling me to stop, I need to remember that it's temporary, that I'll reach the finish. Diabetes will still be around for Leah everyday. She doesn't get to quit, so I'll try not to either.
Sent from my iPhone

Thursday, July 14, 2011

How low can you go

"Mom, I don't feel good."
Leah popped her head out of the water during swimming lessons to let me know she was feeling low.
3...2...1...and the meter read 35.
It's those moments that I feel like I can't get the juice box open fast enough, that a few seconds takes what seems like an hour as your heart drops to your stomach.
A juice box and glucose tab later, she wanted to get right back in and swim. Every time she went under water and took longer than the other kids to come up I felt sick to my stomach.
Its times like this I think...what if she hadn't felt it? How low can you possibly go without a horrible outcome?
I hope we never know the answers to those questions. I hope we can catch them every time before that ever happens. I hope someone cures this stupid disease.

Monday, July 11, 2011

Margherita Pizza

We love to grill pizza in the summer. This one has been my favorite so far!

dough for your favorite pizza (I like (almost)whole wheat)
3 medium sized tomatoes, sliced thin
10-12 basil leaves, cut into ribbons
8 oz. fresh mozzarella
1/4 cup olive oil
3 crushed garlic cloves

Grilled method:
Using a pizza peel, cook one side on the grill until lightly browned, and repeat on the other side. 

Remove from grill  and put on cookie sheet or pizza pan for the oven.

Brush with oil and garlic.

Add sliced tomatoes, basil, and mozzarella.

Broil on Low until cheese is melted and bubbly, about 10 minutes--watch so it doesn't burn!

Oven method:
Preheat oven to 400 degrees. 

Roll out your favorite dough onto a cookie sheet or pizza stone.

Add sliced tomatoes, basil, and mozzarella.

Bake 20 minutes or until crust is golden.

(Almost) Whole Wheat Pizza Dough

  • From

  • 1 cup water
    2 tablespoons water
    2 tablespoons olive oil
    1 1/2 cups all purpose flour
    1 1/2 cups whole wheat flour
    1 teaspoon sugar
    1 teaspoon salt
    2 1/2 teaspoons yeast

  • Add all ingredients to bread machine and choose Dough setting. Roll out and top with your favorite ingredients. Bake at 400 degrees for about 20 minutes or until cooked through.

    Or use a pizza peel to grill on both sides (usually just a few minutes on each side) until lightly crispy. Then add your favorite toppings and broil in the oven until cheese is melted--grilled is our favorite!

    Total carbs in dough is 282.

    Sunday, July 10, 2011

    Vacation Recap

    Summer vacation!!

    First stop, Nashville...

    Famous Music venues
    Elvis Spotting!

    Dinner out

    The Parthenon at Centennial Park

    10k on the Fourth

    Then on to South Carolina...

    Happy 4th of July!

    House in the mountains

    Cool trails

    Beautiful waterfalls

    Cute kids!

    Swimming and sun

    Great memories

    Wonderful trip!!