First of all, thank you to Leighann at D-mom blog for highlighting Miles of Hope in her Grassroots Fundraising series today!! We've almost doubled our online donations in a week, and our registration continues to grow.
On a related note, I saw a quote by Dr. Faustman today that said when it comes to diabetes she still hears people say "I know someone with type 1 diabetes, and they're fine," and that it's important to educate and clear up misconceptions about this disease.
As parents we hear this all the time. We're told by people that we're lucky it's not something worse. That they know someone who "got diabetes as a kid and now they're grown up and fine."
But it's not fine. 10 fingers pricks a day is not fine. Multiple injections a day is not fine. Being hooked up to multiple devices each day is not fine. And that's just the physical stuff.
What about the anxiety at school Leah has if she's late to lunch after her check in the office. The sleepover she can't go to, or the interruptions at a birthday party or a playdate. The tears after someone notices she's "different" (in their eyes). The carb counting and limitations.
There's the never-ending fear of the unthinkable happening at night. Or the complications that can come as a result of living with this disease, even when you're working your butt off every day to try to get it right. None of it is fine.
Fundraising can be hard. It takes a lot of energy and time, and it's difficult to get the point across of what this disease really means for our kids. But it's worth it.
I will never be "fine" with diabetes. We know everyone has hardships in life and we count our blessings every day. But diabetes is awful, relentless, and it takes far too many lives. It needs to go away. And our kids deserve every penny we can raise, every amount of effort it takes to make that happen. Then things will be fine.